Wednesday, February 22, 2006

Jan had an angyogram

Today could have been just another day in Jan's recovery. We could have celerated one less day for Jan's stay at the hospital. But today the neurologists decided to do an angyogram(?) on Jan. The procedure is frightening but in the opinion of the doctors is low risk. She had some dye injected into her blood stream so they could get a picture of the blood vesels in her brain. The procedure was successful, they had a good view of her brain, what was alarming from what they saw is that there is vaso-constriction (some narroing of the blood vesels) that could cause another series of strokes.

Jan is still in the woods, in our enthusiasm we tend to forget that the doctors did mentioned at the beginning that the difficult stage would be the first 15 to 20 days.

She came back a exhausted and somehow depressed and irritable. When I asked her if she wanted to switch places with me, she just ignored me.

She is using her glasses, which she puts on by herself. I showed her some pictures, for a while, she looked at them carefully. The pictures are familiar faces and familiar places. She smiled at some of them. She was flipping the pages by herself. I tried speaking with her using ASL. She saw my signs but refused to engage.

It is very frustating not to be able to understand what she needs. I imagine it is like being in solitary confinment, both sides unable to communicate with the other.

She is also listening to music. She has a CD player and earphones which she puts on by herself. She is becoming very independent! However, in this situation all this signs of independence and progress can mean nothing when a complication arises.

We need a double dose of support. Thanks you for responding to our petitions so generously.

We'll keep you posted, hopefully with more cheerful news about this extraodinary journey Jan is taking. Remember that she is still very ill.

-Fede

9 comments:

Katy said...

Hello Jan, Fede, Steven, Sue and the others,
It is good to hear about Jan's progress but I can still understand why there are significant risks. It is great to hear that Jan is showing some signs of independence but we must continue to pray for God to work with her.

We prayed for Jan and your families at our small group tonight and even one of my students in the Christian Fellowship at school told me she would continue to pray.

When the time comes, I know ASL also so I would be happy to help communicate if that is what is necessary.

I am trying to continue to Trust in God and not rely on my own understanding but in all ways acknowledge Him and he will make our paths straight (Prov. 3:5-6)

God Bless you all. Thinking of you.
Sending love and hugs of encouragement!
Katy

Ret said...

This angyogram thing sounds kind of scary but I am glad you're continuing to do well and trusting God about your recovery. I'm glad you're enjoying your music. My husband, and Mark and Janette and I are all praying for you. So it's been 13 days now and we're couting.

Joy said...

Dearest Jan,

All of us at RUC's Sunday night service loves you very much. At our services and at our various small groups and gatherings, we are constantly praying for you and for your full and complete recovery. We can't wait until the next opportunity when we can visit you again. You are very large in our hearts.

Marianna made prayer bracelets for everyone to wear, and so you are in our hearts and in our prayers always. Last night, Marianna and I prayed, danced and sang for you. Here is a song to remind you of God's hidden promise for you ...

In the bulb there is a flower, in the seed, an apple tree; in cocoons, a hidden promise: butterflies will soon be free! In the cold and snow of winter there's a spring that waits to be, unrevealed until it's season, something God alone can see.

There's a song in every silence, seeking word and melody; there's a dawn in every darkness, bringing hope to you and me. From the past will come the future; what it holds, a mystery, unrevealed until its season, something God alone can see.

In our end is our beginning; in our time, infinity, in our doubt there is believing; in our life, eternity. In our death, a resurrection; at the last, a victory, unrevealed until its season, something God alone can see.

Jan, beloved daughter of God, hold on to God's loving promise for you which in time He reveals.

Lots of love,
Joy

sharon said...

Dearest Jan,Fede & family,

Thank you for sharing the update of the test went through. I understand it can be scary to hear about the contricted blood vessels & risk of the series of strokes. My grandfather & also a good friend boyfriend both had strokes and through rehab etc have recovery. I am beginning to accept myself thatJan's recovery & AMAZING baby steps is a long process. I trust that God will guide the doctors in monitoring & attending to the constricted vessels.

I'm estastic to hear about Jan's independence,although I can understand her frustration with her confinement, being unable to speak etc. I'd love to learn ASL to communicate if necessary with Jan.

When I play the piano daily I think about Jan and how talented she is playing the piano and singing. Glad to hear she is listening to CD's. I know how important her singing is to her.

I remember the first time I met Jan 7 years ago. I was her roommate at 21st Century Leadership. I'd hear her sing while running the daily morning run & in our room. It was so peaceful & beautiful. Over the years I've enjoyed her singing at church, in the choir etc& I look forward to her singing one day again.

I love you Jan & am praying for you!
Sharon

Ret said...

Hi Jan! So what kind of music are you listening to? Is it reasonably quiet where you are? Knowing me, if I were in the hospital I'd DEFINATELY want my walkman! Especially if I had to be next to the maternity ward/nursery like Janette's mother had to be! *shudder*! This kind of situation sure makes the rest of us think. I bet you'll have a oretty fascinating testimony, eh!
*Big Hugs!*
'Ret

Ret said...

BTW I put in a second prayer request to Joyce Meyer's ministry regarding the blood vessel situation.

Anne from Lindsay said...

Hello Jan & Fede, & Family
We had our weekly prayer/learn group last night and I wanted to let you know we lifted Jan up to God to continue to heal her and restore her. We also lifted Fede up for God to continue to give you strength and wisdom and for the family as well.

I can totally understand the place Jan is in, I would be there to even more so - I am not a good patient. I like to think I am in control - and well I'm not GOD IS.

So that said - Jan please know we all love you and are praying up a storm here in Lindsay.

Can't wait to see you!

Love Anna Banan

Martha said...

Hola amigos,
May God continue to embrace you all with his arms of love.

I understand your frustruation with not being able to communicate the way you used to with Jan and the desire to understand her needs and wants.

I witness this frustration daily as I work as a Speech Language Pathologist with language impaired children. I've learned over the years to have eyes to see all the non-verbal communication that is so rich, and to develop alternative ways to communicate.

What God has taught me is that Love is the ultimate form of communication and we express this in so many ways.

May God continue to walk with you and cradle you in his loving arms.

Love in Christ,
Martha "Martita"

Bernard said...

Dear Fede,
Estamos orando por Jan. Como triste. Esperamos que tudo vai bem com voce. Sentimos muita pra voce.

Please give Jan our love and tell her we are thinking of her and praying. Passabem was a special time and Jan was one of those who made it so.
Trust in the Lord for he will sustain you. Psalm 121
Bernard